Early intervention was an eye opening experience....without Kay Sprayberry, who knows where we would be today. She helped us more than any doctor ever wanted or tried to. She set up appointments with other doctors, physical therapists, occupational therapists and speech therapists, helped us get bailey on SSI. She was a true blessing.
During this time, the neurologist finally decided that because she had an abnormal eeg, he would put her on an epilepsy drug...topamax, eventhough he said she didn't have epilepsy...idk why.
At home therapy began and let me tell you, Bailey hated every single minute of it. She didn't like to be touched, so physical therapy was just horrid. Not much got accomplished by those early intervention days, but I really learned a lot about PDD and how to care for Bailey.
In February of 2003 (Bailey was 18 months old) we were in choir practice after the PM worship service. Bailey had not been feeling well. A church member came to me and said that Bailey had thrown up. I got to her and once again, she was limp as could be. She was barely breathing again. The foamy throw up was not like normal throw up. (such yummy conversations I have with you all!) It was slimy and mucousy, it was like froth. We are sure she injested some of it. So, off to the ER again. This seizure was a bad one. No matter how much medicine they gave her, it just wouldn't stop. Medicine that would normally knock out an adult wasn't even phasing her. She was flopping around uncontrollably on the table. Yet, when you looked into her eyes, there was an emptiness an absence. Eventually, though, the seizure subsided and she was resting. Tests were done and they realized that she had a reaction to the topamax....you know those side effects that they list off...may cause this, this, this, this, and death! hehehe, those crack me up. Well, you outta know Bailey was one of the rare ones to have this side effect. So into the hospital she went for a few more days.
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