Thursday, October 14, 2010

I Knew It!

Well, we just got home from Dallas.  It has been a terribly long and exhausting week.  Let me bore you with a few details to get us up to speed, OK?

We left for Georgia last Tuesday (meeting nana/peepaw to drop off bailey) and spent the week with family/friends in preparation for Jessica Brown & Zach Newman's wedding!  Brody was to be in the wedding, Michael sang four songs in the wedding, and I catered the rehearsal/reception.  Needless to say, it was (almost) controlled chaos!

Michael preached Sunday morning and then we left out to meet nana to pick up Bailey and head to Dallas.  So we arrive in Dallas this morning at 2AM.  We attempt to find a decent hotel to sleep for a few hours before having to be at the hospital by 8AM.  They all wanted like $150. What.In.The.World.  Well, we finally saw this hole in the wall hotel and just stop there.  And it was only $65!  woot woot!!!!

Well, you get what you pay for...granted, it was clean, but the sheets were nearly see through!  no shampoo, so no hairwashing for me!  no iron/ironing board...so i went to the hospital looking like white trash.  the towels were the size of hand towels...by the time I dried my arm I was like, "ok, now how do i dry the rest???"

Anyway, we make it to the hospital and by 12:30 we have seen the PA 4 times, the dr 3 times, had a set of xrays and a cat scan.  Talk about efficient!

But the whole time, I kept telling Michael, "they aren't going to do anything for her."  And I was right!

The doctor was very thorough with us, but told us that he thinks we should just wait a year and see if her condition worsens.  He says corrective surgery is a major surgery that he doesn't like to just jump into.  So as long as her pain is low and she can handle it, he wants to hold off.

I knew it!  Bailey is never well enough to be normal, and she's not weird enough to get help.  Rock and a hard place, can't win for losing, and all those other sayings!

P.S.  On a good note, Bailey was better today than she has EVER been at a doctor's office.  She cooperated and never lashed out.  Brody was good, too, which was a blessing as well!  Thank you Lord for making the visit an easy one!  Thanks to all who have been praying.  She is still in pain, but I suppose the doctor's know best!

On Her Behavior...

Although Bailey's behavior was generally appropriate for her developmental level, it could sometimes be problematic.  She was sometimes physically aggressive, especially with her younger brother Brody.  This behavior had occasionally been noted in the classroom as well.  She had also been known to scratch/injure herself.  Those working with her should do their best to distract her attention and/or remover her form the situation as necessary.  This examiner observed that Bailey would sometimes turn away and lie down in order to avoid an activity, even kicking gently as if to mildly protest.  When this type of behavior occurs, staff should try to reengage her in the activity after waiting for a few minutes.  If overt resistance continues, a different activity should be tried