Year one was so trying for us as a family and for me personally. Because she never slept, I had to hold her for the couple of hours she would drift off. Most nights were spent in the living room on the couch. I would have to sit perfectly still. No change in my breathing could take place, no scratching itches, no yawning, no sneezing...all of this would wake her and we would start all over. I didn't sleep in my own bed any of that year, and for the majority of the next two years.

Everyday was the same old thing. Bailey was helpless, even at one. She didn't play with toys, she didn't play with anything except a remote control and an old cell phone. Once she could sit up unattended, she would just sit there and rock back and forth.....there, but not there. Daytime wasn't so bad since she really couldn't 'do' anything...But those night hours took their toll on me.

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